Tips to Help Caregivers Manage their own Fatigue
Caring for a loved one with cancer may be one the toughest challenges a
family can face. The role of the family caregiver has changed
dramatically over the years to include providing advanced care in the
home, including administering chemotherapy, intravenous therapies and
elaborate post-surgical care. As a result of treatment, many cancer
patients experience debilitating fatigue, nausea, pain, and depression,
making the caregiver role even more difficult.
In addition to conducting daily tasks, such as preparing meals,
cleaning, and providing transportation, caregivers virtually become an
extension of the cancer treatment team by frequently talking to
health-care providers, administering medication, and assessing
treatment. Unfortunately, this busy schedule often does not leave time
for the cancer caregiver to take care of his or her own needs.
A recent study from the Journal of Family Nursing (JFN) demonstrated the
impact caregiving can have on the caregiver's physical, emotional and
financial health. The study found that:
- 62% of caregivers said their own health had suffered as a result
of caregiving;
- 70% said their families were not working well together; and,
- 46% reported inadequate financial resources.
Further, another survey, issued by the Fatigue Coalition, found that
cancer patients' fatigue caused 49% of caregivers to make changes to
their work status, including taking days off from work, reducing work
responsibilities, discontinuing work or going on disability.
There is help! Recent research indicates that community based education
and support for caregivers may help to relieve the stress of this
demanding role. One such program is Strength for Caring, which provides
caregivers with the communication tools, interventions, and resources
they need to care for a loved one with cancer. Cancer caregivers and
patients can learn more about the program and where it is being
conducted in their area by calling 1-888-ICARE80 or by visiting
www.oncolink.upenn.edu/sfc.
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Lack of understanding within a family about cancer fatigue can lead to
communication problems, resentment, and feelings of guilt. |
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